Your email address will not be published. 9. More information about Elsie Lacks is available in Chapter 33 of The Immortal Life of Henrietta Lacks, titled The Hospital for the Negro Insane.. formations. Why do you think Pattillo agreed to help Skloot contact Henriettas family? Why did the Lacks family think the doctors were taking their blood? Why did Henriettas doctors need to ask for her familys permission to remove tissue samples after her death? 4. David Jr. Sonny Lacks Henrietta and Days third child, Deborah Dale Lacks Henrietta and Days fourth child. Exhausted from staying up with the records. 5. How did Bobette respond to Deborahs pregnancy? (Note: A fruitful debate could be organized with half the class proposing that the book be read as Skloots hero journey, and half proposing that the book should be interpreted as Deborahs journey.) 11. Do you think this was a good decision? What do the Lackses believe Johns Hopkins did to black people? 8. Lacks was a poor black tobacco farmer who died of cervical cancer in 1951 at the age of thirty-one, leaving a husband and five children. 6. Using the book as a guide, describe the process of scientific inquiry. She was a trained surgical nurse. Based on this statement, do you believe TeLinde and Guy had the right to obtain a sample from her cervix to use in their research? on 50-99 accounts. Deborah and Zakariyya were shocked to hear Lengauer admit that Johns Hopkins had made a mistake in their treatment of the Lacks family. 4. 5. Journalists and OthersCourtney Mama Speed resident of Turner Station and owner of Speeds Grocery. A supervisor arrives, demanding to know why they are going through the records. By signing up you agree to our terms and privacy policy. How did Rogers discover Henriettas real name? How did the development of HeLa cells change the way research could be conducted? WebSir Lord Keenan Kester Cofield. Chapter Eleven: The Devil of Pain Itself 1. Do Geys attitude and actions after his own diagnosis of terminal cancer change your opinion of him? TCU Library's core values and strategies. 7. What details suggest that Carrels claims about the immortal cell line were not scientifically sound? 13. 3. By clicking Sign Up, I acknowledge that I have read and agree to Penguin Random House's Privacy Policy and Terms of Use and understand that Penguin Random House collects certain categories of personal information for the purposes listed in that policy, discloses, sells, or shares certain personal information and retains personal information in accordance with the policy. If Henrietta Lacks could know how important her cells have been to science, do you think she would approve of the fact that they were taken from her without her knowledge or consent? Moore appeals the decision.1985 Portions of Henriettas medical records are published without her familys knowledge or consent.1988 The California Court of Appeals rules in John Moores favor, saying that patients must have the power to control what becomes of their own tissues. He organizes a yearly HeLa conference at Morehouse in Henriettas honor. WebThere were no specific records connecting Elsie to any research, but Lurz thought she was probably included in a study on pneumoencephalography, a method of draining fluid from Eliza Lacks Pleasant Henriettas mother. Rebecca explains what they've been through, and Gary tries to calm Deborah. 3. What is Lengauers attitude toward the HeLa contamination problem? Explain how Davons heroic actions saved Deborahs life. 6. It is important to remember that this book is not just about HeLa and Henrietta, but also about the friendship between these two women, and so this night is a crucial turning point in that story. The Immortal Life of Henrietta Lacks Suffering | Shmoop He published details from Henriettas medical recordsand autopsy report without permission from the Lacks family.Michael Rogers Rolling Stone reporter who wrote an article about the Lacks family in 1976.He was the first journalist to contact the Lackses.Sir Lord Keenan Kester Cofieldattempted to sue Johns Hopkins and the Lacks familyTed Slavin a hemophiliac whose doctor told him his cells were valuable. Why is the fact that the Lacks family cannot get health insurance an example of irony? After Deborah told him about Elsiethat people thought she was disabled but that Deborah suspected she was just deafLurz rose and went to a storage cabinet. What do the contents of the apartment tell you about his life and personality? What does this term suggest about the values of the Lacks family? Why do you think Deborah eventually decided to talk with Skloot? Rina reads around 100 books every year, with a fairly even split between fiction and non-fiction. 2. The Hospital for the Negro Insane 2001. He warned Deborah that Crownsville in the 40s and 50s, when it was called the Hospital for the Negro Insane, had not been a good place. 4. Pattillo described how Elsie was frequently used for medical experiments without informed consent or proper consideration for her well-being, similar to what happened with her mother Henrietta's cells. Explain the inherent irony of the fact that the Tuskegee HeLa production lab was operating at the same time that the infamous syphilis study was being conducted. He had five children by a former slave named Maria and left part of the Lacks plantation to them. 5. 8 analyze johns hopkinss official response to wyches - Course Hero 2. How are Gladys and Gary related to Deborah? among writers and scholars in the arts, humanities, and social Describe the contribution that HeLa has made to research on the HIV virus and the AIDS epidemic. 3. She was trained as a surgical nurse.Mary KubicekGeorge Geys lab assistant who cultured HeLa cells for the first timeRichard Wesley TeLindeone of the top cervical cancer experts in the country at the time of Henriettas diagnosis. 11. Who profited monetarily from the sale of HeLa cells and other human biological materials? 7. Who do you think makes the more persuasive argument, Van Valen or Stevenson? You'll also receive an email with the link. 2. You'll be able to access your notes and highlights, make requests, and get updates on new titles. Instead, we must see in every person a universe with its own secrets, with its own treasures, with its own sources of anguish, and with some measure of triumph. Analyze the book in light of this quote. Do you think this was the response that the writers intended? From a legal standpoint, how is the fact that the doctors failed to obtain consent prior to taking blood from the Lacks family in 1973 different from their initial failure to obtain consent from Henrietta in 1951? Dont have an account? Gary believes that Henrietta is a divine being come to earth to help humanity; he believes that the immortality of the HeLa line is explained by a Biblical passage stating that all who believe in Jesus will have eternal life. How was Gartler able to link the contamination problem to HeLa? Why was Deborah unable to attend the National Foundation for Cancer Researchs Henrietta Lacks conference? 3. Journalists and OthersCourtney Mama Speedresident of Turner Station and owner of Speeds Grocery. Deborah submitted a request to have copies made of Elsie Lacks medical records, and Lurz left Skloot and Deborah with some archival documents to look through while he made the copies. 3. 6. Describe the progression of Henriettas cancer in the eight months between her diagnosis and her death. Why didnt his surgeons honor his request? and culture. Why is standardization important in scientific research? WebIt's also a search for the right people to love. --Tom Nissley, Amazon.com (Retrieved July 11, 2011). How was Day related to Henrietta? How did doctors justify using patients in public hospital wards as medical research subjects without obtaining their consent or offering them financial compensation? The Immortal Life of Henrietta Lacks Teachers Guide, certain categories of personal information, discloses, sells, or shares certain personal information. He developed the techniques used to grow HeLa cells from Henriettas cancer tissue in his lab. Why do you think she responds this way? Before her death, she received treatment in a segregated colored ward at Johns Hopkins, the only hospital in Baltimore that would treat black patients. 5. 4. 5. Deborah shoves Rebecca into a wall, and Rebecca tells her to back off. How did the scientific community respond to Gartlers theory about HeLa contamination? 2. on 2-49 accounts, Save 30% 2. 10. 5. What did she do instead? How did the public respond to the idea of cell hybrids? From the creators of SparkNotes, something better. Sonny undergoes a successful quadruple bypass survey, but wakes up $125,000 in debt because he did not have medical insurance. Why had he saved patients medical records? Start earning points for buying books! She helped raise Lawrences siblings after Henriettas death and advocatedfor them when she discovered they were being abused.Cliff GarretHenriettas cousin. In your own words, explain the paradox benevolent deception. 4. Shortform summary of "The Immortal Life of Henrietta Lacks", full The Immortal Life of Henrietta Lacks summary, Edward Snowdens CIA Training: Breaking the Rules, Capitalism in Healthcare: Reduce Barriers, Add Choices, Adenosine and Sleep: The Science of Being Tired, How Nextdoor Tried to Fight Racism on Their App, Lincoln Assassination Timeline: How the Plot Unfolded. The Immortal Life of Henrietta Lacks Determine the central ideas or conclusions of a text; trace the texts explanation or depiction of a complex process, phenomenon, or concept; provide an accurate summary of the text. What does it tell you about Joes personality and background? The Immortal Life of Henrietta Lacks WebElsie Lacks (born Lucille Elsie Pleasant)Henriettas second born and eldest daughter. What was Elsies early life like? Contact us 10). The next day, Skloot and Deborah went to Crownsville to see if they could find any record of what happened to Elsie. According to State Attorney General Louis Lefkowitz, what do people have an inalienable right to? She is not always an easy person to be friends with - she is paranoid and somewhat impulsive, even once becoming physically violent with Rebecca. Chapter Two: Clover 1. Best summary PDF, themes, and quotes. 5. 2. Explain the numerous ways that the Lacks familys right to privacy was violated. 4. Discuss the methods by which a nonfiction writer is able to recreate dialogue and recount descriptions of historical events and locations. 2. Links to several radio productions and podcasts are provided at the end of the guide. 6. Lengauer answered many of their questions about Henriettas illness and cells. What does Zakariyya blame on Henriettas cancer cells? 2. Chapter Twenty-One: Night Doctors 1. What purpose was the school/hospital intended to serve? Determine the central ideas or conclusions of a text; summarize complex concepts, processes, or information presented in a text by paraphrasing them in simpler but still accurate terms. 5. 8. According to Ethels cousins, why did she dislike Henrietta? Who was the daughter of Henrietta Lacks that died only a few years after her mother? One of the arguments against giving people legal ownership of their tissues is summarized in the following quote from David Korn, vice provost for research at Harvard University: I think people are morally obligated to allow their bits and pieces to be used to advance knowledge to help others. WebShe learned from her mother's medical records that her sister had been placed at Crownsville. Craft and Structure Determine the meaning of symbols, key terms, and other domain-specific words and phrases as they are used in a specific scientific or technical context relevant to grades 1112 texts and topics. Refine any search. Why did David Lacks take Henrietta to the public wards at Johns Hopkins instead of a closer hospital? Assess how point of view or purpose shapes the content and style of a text. Why did Deborah choose not to request a copy of her mothers medical records? Even without having been raised by Henrietta, Deborah is clearly her mothers daughter, and carrying one her legacy. Richard Wesley TeLinde one of the top cervical cancer experts in the country at the time of Henriettas diagnosis. 2. He developed the techniques used togrow HeLa cells from Henriettas cancer tissue in his lab.Howard JonesHenriettas gynecologist at Johns HopkinsLeonard Hayflick microbiologist who proved that normal cells die when theyve doubled about fifty times.This is known as the Hayflick limit.Margaret GeyGeorge Geys wife and research assistant. 7. 2017 African American Review 7. Here's what you'll find in our full The Immortal Life of Henrietta Lacks summary : An avid reader for as long as she can remember, Rinas love for books began with The Boxcar Children. Analyze the consent statement that Henrietta signed on page 31. The two women drive to Crownsville, which was formerly known as the Hospital for the Negro Insane. Based on the objective details in her medical chart, what can you infer about Henriettas life and personality? 2. She was a black woman, who had cervical cancer growing in her cervix. Youve successfully purchased a group discount. What do Golds comments about his decision to publish private information without consulting the Lacks family reveal about his attitude toward them? Want to know what people are actually reading right now? This item is part of a JSTOR Collection. 3. The description His light brown face had grown tough with age, cracked but soft, like a pair of wellworn work boots, conveys a strong impression of Day Lacks. Examine pages 5 and 6 and write down each step that Skloot took to begin her research. What questions did Deborah have about her mother and sister? 2. Chapter Twenty-Eight: After London 1. Delancey discusses one specific example at length: Danvers State Hospital in Massachusetts. 5. Specific cases to consider include the lawsuit filed by the Havasupai tribe against Arizona State University, the lawsuit filed by Texas parents over the collection of blood samples from their newborn children, and the controversy over the University of California at Berkeleys request that incoming freshman submit DNA samples. Contrast the working conditions of black workers and white workers at the Sparrows Point Steel Mill. Teachers are encouraged to adapt some of the prompts for use in debates or Socratic seminars. 5. In what ways, if any, did Gey personally profit from the development of HeLa? However, the reader easily understands the meaning of these actions in the wide context of her character and experiences. Were cells taken only from black patients? What do these interactions reveal about their attitudes toward religious faith? Why did he win the Nobel Prize? When Henriettas story first appeared in the mainstream media in 1976, many viewed it as one of race and racism. Chapter Thirty-Five: Soul Cleansing 1. Rebecca at last loses her cool, however, and this, surprisingly, makes Deborah relent. Rebecca finishes the book and tries to call Deborah in order to read it to her, but Deborah doesn't answer the phone. 5. How is he connected to both Henrietta Lacks and George Gey? The Immortal Life of Henrietta Lacks - SparkNotes Summarize the events in Deborahs life leading up to her initial contact with Rebecca Skloot. 6. After getting out of jail, Zakariyya Rahman participates in a number of research studies in exchange for monetary compensation. How are different types of cancer categorized? Explain why Golds journalism could be considered irresponsible and/or unethical. What did she promise to do for the Lacks family if and when the book was published? What beneficial biological processes involve mitosis? GradeSaver, 23 March 2017 Web. When Gary's usual methods of instilling calm don't work, he hugs Deborah and begins to recite verses from the Bible. He ended up abusing Deborah.Gary LacksGladyss son and Deborahs cousin. 7. Within a few years, a company named Microbiological Associates would begin selling HeLa for profit.1952 Scientists use HeLa cells to help develop the polio vaccine.1953 HeLa cells become the first cells ever cloned.1954 The pseudonym Helen Lane first appears in print as the source of HeLa cells.1954 Chester Southam begins to conduct experiments without patient consent to see whether or not injections of HeLa cells could cause cancer.1957 The term informed consent first appears in court documents.1965 HeLa cells are fused with mouse cells, creating the first animal-human hybrid cells.1965 The Board of Regents of the University of the State of New York finds Southam and a colleague guilty of unprofessional conduct and calls for stricter guidelines regarding human research subjects and informed consent.1966 To ensure adherence to the new guidelines for research involving human subjects, the National Institutes of Health begins requiring the approval of Institutional Review Boards for any research they fund.1966 Gartler drops the HeLa Bomb and proposes that HeLa cells have contaminated numerous cell lines.1970 George Gey dies of pancreatic cancer.1971 In a tribute to Gey, Henrietta Lacks is correctly identified for the first time in print as the source of HeLa.1973 The Lacks family learns for the first time that Henriettas cells are still alive.1973 Researchers from Johns Hopkins take samples from Henriettas children to further HeLa research, without informed consent.1974 The Federal Policy for the Protection of Human Subjects (the Common Rule) requires informed consent for all human-subject research.1975 Michael Rogers publishes an article about HeLa and the Lacks family in Rolling Stone. Zakariyya Bari Abdul Rahman (born Joe Lacks) Henrietta and Days fifth child. When Deborah finally decides to give Skloot access to Henrietta's medical records it is a significant moments. In what other ways do scientists, corporations, and individuals profit as a result of HeLa? Ted Slavin a hemophiliac whose doctor told him his cells were valuable. Do you think she would have understood what was being asked of her? Lurz managed to find Elsies autopsy report along with a photograph. The majority of the samples were taken without consent.2005 Members of the Native American Havasupai tribe sue Arizona State University after scientists take tissue samples the tribe donated for diabetes research and use them without consent to study schizophrenia and inbreeding.2005 Six thousand patients join a lawsuit against Washington University, demanding that the university remove their tissue samples from its prostate cancer bank. What are the connotations of the term home-house? Explain what the Jim Crow laws were. She had a 5. WebElsie was institutionalized at Crownsville Hospital in Maryland and died in 1955. Save my name, email, and website in this browser for the next time I comment. What do you think Cofield did? 9. Get Annual Plans at a discount when you buy 2 or more! In what specific ways do you think that learning of HeLa soon after Henriettas death might have changed her family members lives? She was just thirty-one years old. The Lacks family often treats the HeLa cells as though they were Henrietta; they speak to them as though they can hear (such as in Chapter 32 when Deborah warms a vial of her mother's cells in her hands, saying that she's cold), they refer to them as having agency and thought, and so on. With warehouses on three continents, worldwide sales representation, and a robust digital publishing program, the Books Division connects Hopkins authors to scholars, experts, and educational and research institutions around the world. Project MUSE is a leading provider of digital humanities and social sciences content, providing access to journal and book content from nearly 300 publishers. Despite Deborahs clear shock, she insisted she still wanted to go to the Maryland State Records Archive to see if Elsies medical records had survived. She takes the photo of Elsie with her and thanks Paul Lurz. 9. What is ironic about his participation in these studies? 3. 7. Review the notes on Henriettas medical history found on page 16. Literacy in Science and Technical Subjects Grades 9-10 Key Ideas and Details Cite specific textual evidence to support analysis of science and technical texts, attending to the precise details of explanations or descriptions. Deborah clearly wasnt handling the stress of the day well. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Elsie Lacks: Henriettas Daughter, Committed to a Hospital. 6. Less than a year after her initial diagnosis, Henrietta succumbed to the ravages of cancer and was buried in an unmarked grave on her familys land. Why would HeLa contamination be a problem for researchers? She supported Henrietta duringher illness. What unusual characteristics of HeLa cells made them ideal for use in the polio vaccine trials? Where They Are Now/Afterword 1. Sometimes it can end up there. 8. 10. Paraphrase the explanation of how a virus reproduces found on page 97. Slavin founded Essential Biologicals, a company that sold his cells, and later cells from other people so individuals could profit from their own biological materials.Timeline1889 Johns Hopkins Hospital is founded.1912 Alexis Carrel claims to have successfully grown immortal chicken-heart cells.1920 Henrietta Lacks is born in Roanoke, Virginia.1947 The Nuremberg Code, a set of ethical standards for human experimentation, is produced as the result of a trial against several Nazi doctors who conducted experiments on prisoners during WWII.1951 George Gey successfully cultures the first immortal human cell line using cells from Henriettas cervix. How does Deborah demonstrate that she is in control when her right to view Elsies records is questioned? Why did Ted Slavin start Essential Biologicals? What belief of Deborahs does his attitude affirm? What does Deborah do that illustrates that she has a great sense of humor? Any BILLING QUESTIONS should be Describe conditions at the hospital during the time period when Elsie was a patient there. Since everybody benefits, everybody can accept the small risks of having their tissue scraps used in research. However, in a profit-driven health care system, all citizens do not have equal access to the treatments and medications made possible by tissue and cell research. What did Cofield do when he realized that the Lacks family had blocked his access to their family records? The conference is suddenly canceled after September 11, with no plans to reschedule. 6. Who is Franklin Salisbury Jr., and why did he contact Deborah? 7. Rebecca says she won't (and she doesn't) and she smiles slightly, admiring Deborah's protectiveness of her sister. Other Titles of Interest I Know Why the Caged Bird Sings by Maya Angelou Ten Days in a Mad-House by Nellie Bly The Speckled Monster: A Historical Tale of Battling the Smallpox Epidemic by Jennifer Lee Carrell Remembering Jim Crow: African Americans Tell About Life in the Segregated South Edited by William Chafe, Raymond Gavins, and Robert Korstad Fried Green Tomatoes at the Whistle Stop Cafe by Fannie Flagg The Immortalists: Charles Lindbergh, Dr. Alexis Carrel, and Their Daring Quest to Live Forever by David M. Friedman Bad Blood: The Tuskegee Syphilis Experiment by James H. Jones The Right to Privacy by Ellen Alderman and Caroline Kennedy In The Name of Eugenics: Genetics and the Uses of Human Heredity by Daniel Kevles The John McPhee Reader by John McPhee and William Howarth Polio: An American Story by David M. Oshinsky The Lives They Left Behind: Suitcases from a State Hospital Attic by Darby Penny, Peter Stastny, Lisa Rinzler, and Robert Whitaker Genie: A Scientific Tragedy by Russ Rymer Coal River by Michael Shnayerson Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by Harriet A. Washington The Plutonium Files: Americas Secret Medical Experiments in the Cold War by Eileen WelsomeOnline Resources Author Web site: http://rebeccaskloot.com/ Lacks family Web site: http://www.lacksfamily.com/ Radiolab segment on the story of Henrietta Lacks and her children, featuring audio footage of Deborah Lacks talking about her mothers cells, and actual recordings of key scenes from the book: http://www.wnyc.org/shows/radiolab/episodes/2010/05/07/segments/150681 Fresh Airs Terry Gross interviews the author: http://www.npr.org/templates/story/story.php?storyId=123232331 CBS Sunday Morning piece featuring interviews with the author, members of the Lacks family, and a representative from Johns Hopkins: http://www.cbsnews.com/video/watch/?id=6304949n&tag=related;photovideo Tavis Smiley interviews the author: http://www.pbs.org/kcet/tavissmiley/archive/201005/20100514_skloot.html Are We Alone? public radio segment focusing on the science of HeLa cells: http://radio.seti.org/episodes/Cell_Cell_ Author appearance on The Colbert Report: http://www.colbertnation.com/ thecolbertreportvideos/267542/march162010/rebeccaskloot Slate article about the Law & Order episode based on the book: http://www.slate.com/id/2257189The Immortal Life of Henrietta Lacks and Common Core State Standards With appropriate scaffolding, The Immortal Life of Henrietta Lacks will meet the standard for Range of Reading and Level of Text Complexity for most high school grade levels.